Prioritizing Home and Community-Based Services

ALERT in bold white letters on a red background

The following alert is from the New York Association on Independent Living, (NYAIL) …

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The Senate is still working to pass a budget reconciliation package, and they will be deliberating over the next few weeks on the key priorities to include. Funding for Home and Community-Based Services (HCBS) is still a top priority for the Independent Living network and one of the most important issues that NCIL is supporting this year. There is still time for you to take action. This week, Senator Bob Casey, Chair of the U.S. Senate Special Committee on Aging, shared a memo with the Senate Democratic Caucus stressing the urgent need to fund Long-Term Care/Medicaid Home-Based services. Read the memo (PDF).

Take Action!

Contact your Senators and urge them to include HCBS funding in any reconciliation package that may be worked on during the next few weeks! You can call the Capitol Switchboard at (202) 224-3121 (voice) or (202) 224-3091 (TTY) and ask to be connected to your Senators, or you can find your Senators’ contact forms at senate.gov.

Talking Points

Remind your Senators of these key points:

  • While disabled people have the right to receive services and supports in our communities, far too many are unable to access them.

  • Millions of people with disabilities are unable to get out of institutions because the services they need aren’t available to them in the community.

  • Hundreds of thousands of our people are on waiting lists for HCBS—many will wait years before receiving the services they need.

  • The HCBS workforce—primarily women of color—has been underpaid and undervalued for decades, despite the vital services they provide.

  • The average cost of care through home-based care is approximately $26,000 a year, compared to roughly $90,000 or more for nursing home or other institutional care (See Sen. Casey’s memo linked above).

A significant investment in HCBS is urgently needed to expand access to services and support the workforce that provides them. We are pleased that the Administration and Congress are continuing to prioritize this. While this investment was urgently needed even before the COVID-19 pandemic, the pandemic made it even more critical. Take action today!

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If you are interested disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com

518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.